As direct-to-consumer genetic tests become increasingly available, particularly over the Internet, it is important to understand their privacy risks. This document explains some of the key privacy risks associated with these tests, informs individuals of their rights and encourages them to ask themselves a series of questions before buying one online. (This document opens as an external link.) Updated in December 2017.
This policy statement on the collection, use and disclosure of a genetic test was issued in response to the federal Genetic Non-Discrimination Act. That Act prohibits any person from requiring an individual to undergo a genetic test as a condition of providing goods or services or entering into a contract. The statement was issued by the Office of the Privacy Commissioner of Canada, the Commission d'accès à l'information du Québec, the Office of the Information and Privacy Commissioner for British Columbia and the Office of the Information and Privacy Commissioner of Alberta. Issued in December 2017.
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